Links

http://www.epposi.org - European Platform for Patients' Organisations, Science and Industry

A European partnership of patients' organisations, science and industry working on health care policies towards treatment and prevention of serious diseases.

http://orphanet.infobiogen.fr/ - OrphaNet: A network for patients and physicians for rare diseases

ORPHANET is a relational database of rare diseases and orphan drugs for the general public. It aims to improve diagnosis, management and treatment of rare diseases. Its access is free of charge.

http://www.eurordis.org/ - EURODIS: European Organisation for Rare Diseases

An alliance of patients associations dedicated to improving the quality of life of all people associated with rare diseases in Europe.